Monthly Archives: May 2010

The Trials of an Indifferent Eater

It’s day #4 of Diabetes Blog Week. I have really enjoyed reading so many of the posts. I think I have a greater appreciation for what parents of PWD go through. (Here’s to you, the hard-working and perpetually worrying D-Moms and D-Dads!) And I feel more connected to the community than ever before. Thanks for proposing this, Karen!

Today’s topic is food, specifically “To Carb or Not To Carb?” What we eat and what we avoid. High carb or low carb diets. It’s all on the table — so to speak — today.

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Fellow people with diabetes and other readers, I have a confession. I’m not really that into food or eating.

There. I said it.

Don’t get me wrong. I really enjoy eating tasty things, especially when they’re prepared with great care and passion. Some of my favorite things in the world are JP Licks ice cream, truffles from Moonstruck Chocolates, cannoli from Mikes in Boston’s North End, really great cheesecakes, and fresh berries. There’s no more enjoyable way to start the day than with a chocolate croissant, pain au chocolat, or crêpe; and it’s probably good that I’ve given myself a (small) weekly quota. I can still taste the fantastic (and very expensive) steak that I had at Morton’s Steakhouse in San Diego almost ten years ago; and the memory of the stilton on the cheeseburger from Gourmet Burger Kitchen in London still makes me smile. As do the rogan josh from the Lake Palace in Udaipur, the dosa I had in Shimla, and the gulab jamon in Madras. Just about every time that I’m out riding my bike during somebody else’s mealtime, I smell a grill and desire a bratwurst with sauerkraut and all the fixings. About once a month I want to take a trip to Salt Lake City to have the best reuben sandwich I’ve ever tasted; and just as often I want to find that hole-in-the-wall bar-b-que shack in the woods outside Kansas City that the energy traders took me to a few months before I was diagnosed. I’m surprised I haven’t made a road trip with Lisa to Montréal just to go to Le Keg. I like good pizzas and well-made omelets and blueberry waffles. I have a thing for fully stuffed, unhealthy burritos from Qdoba or Chipotle and palak paneer from just about anywhere. And dammit, I’m not even hungry now, but I want a fish taco from Rubio’s.

Having owned up to all that, I can still say that I’m not a foodie. (Though I wouldn’t mind being one.) My approach toward food is (sadly) opportunistic. If the chance to eat great food is present, I will take up the challenge (and probably pick up the check for friends, too). But for the most part, I’m just kinda indifferent. I’m adverse enough to risk that I don’t go out of my way to find great restaurants near where I live. Furthermore, I lack the experience or the passion to be a decent cook/chef/saucier/whatever. Having worked in a deli, I know which meats and cheeses go well together — and cheese is about the best elemental food in existence — but I can’t get the herbs and spices right when I try to put them together in the kitchen. And I’ve been called “methodical and slow” while cooking, so my creations (few as they are) often taste a bit . . . well . . . clinical uninspired.

It’s perhaps a bit ironic that I should be afflicted with something that’s so often thought of as a disease about food. “Cheating?” Not really my thing. It once took me two hours to eat a bag of Reese’s Pieces from the vending machine. Like every American worth his or her extra large portion of salt, I’ve been known to overeat. And it was really quite difficult to cope with the severe “no more than 60g of carbs at any meal” dictum that my former endocrinologist threw down when he started me on NPH in 1999. I ate a lot of sugar-free Jello to keep my stomach from eating the remaining nearby organs that I might need.

Getting on the pump in 2001 was so liberating. I could stop thinking so much about food. Or rather I could think about eating when I wanted to eat and skip snacks when I didn’t want them. Delivered pizza was suddenly back on the menu as a “sometimes food.” So was ice cream, along with those other things that occasionally make eating a transcendent experience. And there’s really no such thing as “cheating” any more, since I can always just bolus tiny amounts for the random snacks that come my way — perhaps because someone put Dunkin Donuts’ munchkins by the printer. Or jelly beans. Or Halloween candy. Or Easter candy. (BTW, this junk food magnet printer is right outside my office. “Oh look, it’s a snack that I don’t really want. Oh, the joy.”)

High carb? Low carb? No carb? I’m really more of a calorie person, myself. I try to keep my meals a reasonable size, and then I count the carbs that are there and bolus insulin accordingly. But the more that I exercise the more that I think about carb timing. Lately, I’ve been trying to eat the right number and kind of carbs in the middle of the day so that I can have a minimal amount of bolused insulin floating around when I head out to ride the bike or go for a run.

And strangely, I’ve been resisting the challenges that this presents, since it feels a bit like the old, austere NPH days. And yet, I want the good things that come with thinking more about food.

That’s diabetes and food in a nutshell, isn’t it?

Posted in Diabetes, Diabetes Blog Week, Life Lessons | 3 Comments

A Guest Post From My Biggest Supporter

It’s day #3 of Diabetes Blog Week. I still have Ludacris’s “How Low Can You Go?” running through my mind after yesterday’s post about hypoglycemia. Lisa, my lovely wife, has been faithfully reading this week’s dispatches and volunteered to write today’s post about my biggest supporter, someone she knows very well: her.

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To paraphrase the Ohio Players, “your diabetes is like a rollercoaster, baby.”

Back in 2003, Jeff and I went to Cedar Point in Sandusky, Ohio. Cedar Point is an amusement park with a bunch of amazing rollercoasters. I love rollercoasters. But at the beginning of the ride, there is the fear . . . that you’re going to get whipped around and turned upside down and have absolutely no control over anything. Oh sure, they tell you that you’ll end the ride safely but at the beginning you’re just sure you’re going to fly off the rails into Lake Erie. This is not an original thought but it is true that living with someone with a chronic disease can be like that emotionally. The most extreme example was the day Jeff was diagnosed, during which I experienced:

Absurdity — as the wide-eyed nurse practitioner told me that, though she couldn’t actually confirm it because the doctor’s testing equipment was broken, she was sure Jeff had diabetes and that was very, very bad. Very bad.

Protective concern — as the nurses in the ER (where we were sent for an official blood test) couldn’t find a vein into which to insert the IV because he was so dehydrated.

Exasperation — at the third round of the exact same battery of questions (we were at a teaching hospital). Yes, he was cranky. Yes, he lost 40 pounds in about 6 weeks. No, he wasn’t hungry. Yes, I’m sure he wasn’t hungry. No, I didn’t know that lack of appetite was odd for people with untreated type I diabetes. No, he didn’t smell “fruity.” Yes, I’m sure I would have noticed if my husband smelled like Fruit Loops.

Back to absurdity — as the attending ER physician became obsessed with the different pressures in my husband’s two eyes. Seriously, I don’t need to feel my husband’s eyeballs, thank you!

Relief — that my husband, hooked up to the insulin-rich IV, was feeling better.

General Confusion — a blood sugar of 304 after more than 18 hours without food can’t possibly be good. How did I not notice that we’ve been in the ER for almost five hours? I guess I missed my afternoon class. Damn, I’m hungry. I’m not leaving to eat because the instant I do, they’re going to admit him and take him to a room somewhere and I’ll never find him.

And then, alone by myself at home that night — the stress and fear. In one of my less-than-shining moments of wifehood, I made him call his mom to tell her the news because I didn’t have the courage to do it myself. I did tell my own parents and spoke to several good friends that night . . . strangely obsessed with the implications of his diagnosis on the unopened box of Hostess Cupcakes in our cupboard.

There was nothing fun about the emotional ride we went on that day. And for a while, it seemed actually to get harder. I hated learning how to give him insulin injections (it honestly doesn’t help that the needle is tiny and he says it doesn’t hurt. That, though, was better than seeing the much larger needle for the glucagon shot in case he got dropped off the back of the magic bus). There was the interminable slowness of the first few post-diagnosis trips to the grocery store where we had to learn how to shop all over again and read every . . . damn  . . . label. There was the feeling of restriction because his insulin regimen meant eating at specific times and knowing exactly what was in the food, which in turn meant having to (perish the thought) cook. And the sadness of knowing that this was probably never going to go away.

But then it gets better, almost before you realize it. We share victories both big (the freedom resulting from switching to an insulin pump) and small (having days with well-controlled blood glucose). We continue to benefit from the overall better health resulting from the lifestyle changes forced upon us. We are able to constantly wonder at medical and scientific advances and hope that, someday, they might find a away to cure this disease. And, we find the humor — in the goofy things Jeff says when his blood sugar is low, in the Life Savers that get very clean (and liquefied . . . thank goodness they’re individually wrapped) in the wash because they weren’t removed from Jeff’s pockets, and in remembering that wide-eyed, oh-so-misguided nurse practitioner with the horrible beside manner who probably violated several privacy laws when she gave me the very, very bad news.

Chronic disease doesn’t just impact the person who has it. It can be hard on the spouse or significant other or child because they’re never going to really get what’s happening and they can’t fix the problem. But, if you’re lucky you remember that neither of you is alone. You’re in it together, and whether you end safely or fly off the rails, nothing is as scary if you have someone to share the ride and hold hands along the way.

Posted in Diabetes, Diabetes Blog Week | 8 Comments

Making the Lows Go

It’s day #2 of Diabetes Blog Week. Today: making the lows go.

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First off, I want to assert that food tastes better when I’m driving the magic bus. Maybe it’s because there’s no less guilt about eating tasty things. Maybe it’s because part of my brain is actually turned off. . . literally. It’s kind of like hearing a favorite song as you drift off to sleep, the equivalent of eating something tasty for the first time. It’s a “new” food experience, and it’s wonderful. And there’s a raw, physical craving for food that I rarely ever experience, too.

But, I hate hypoglycemia. Along with enhancing the flavor of food, it brings other less welcome sensations, such as my brain and eyes trying to trade places and the fear of passing out. So I primarily eat to make the feeling go away.

Add to that the (perhaps incorrect and not altogether bad) feeling that diabetes usually prevents me from eating as much as I want. Back in the bad, pre-pump days of my NPH regimen, it was actually the only excuse to eat more than an exact amount on a rigidly defined schedule.

Combine all of these and it’s not hard to believe that I tend to over-treat my lows. I’m not as bad as I used to be, but it’s still hard to have the hypo feeling and say, “That’s enough. Stop eating tasty, mostly guilt-free food. Diabetes, you win again.” No, I can say that I used to use my lows to stick it to diabetes.

Switching to glucose tablets (and having better influence over my blood sugar) has helped curb the practice. Tabs aren’t that bad — and they’re much easier to eat while exercising, which is why I switched — but they aren’t exciting either. Eating one for the 40th time is no different than eating one for the first time. A bit chalky, a bit melt-awkwardly-in-your-mouth, a bit artificially flavored. Yummy, huh.

Do I miss the days when, sitting up wide awake in the middle of the night, shivering in the middle of the summer because of the cold sweat, I would go down to the kitchen and pour myself some juice and then rummage through the kitchen eating until I got my good sense back? No, not at all.

Posted in Diabetes, Diabetes Blog Week, Life Lessons | 2 Comments

Dentistry and Diabetes: Freak Out Edition

This is Diabetes Blog Week, and I’ll be writing all week on a variety of D-related issues. Today: A day in the life.

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Diabetes is a strange thing. It’s part of me, but it’s outside my control. As Jessica Bernstein said on Diabetes Mine last month, the best I can do is influence my blood glucose numbers. I can’t hate diabetes without hating myself; but if the ‘Betes were another person, I would probably say that I hated it the way treated me on a regular basis. And yet, it’s also inspired me to make changes and take risks and to go beyond my comfort zone on an almost daily basis. Today was such a day.

Most of the time — for me at least — these excursions beyond my comfort zone aren’t very exciting. It’s not like I’m pushing the limits in adventure activities or in the Olympic games or in world-class professional bicycle racing. It’s true that I do like to ride my bike, which means almost daily changes to my insulin pump therapy. And I also like to travel and do (tame) “adventure” things, like going to crazy places and driving an RV. But the things that make me the most nervous are the ones where my diabetes might get in the way of working with other people.

For example, let’s consider this morning. I went to the dentist. The stuff of adrenaline-fueled adventure magazines or inspirational speaking, eh?

I woke up with a high blood glucose: 300ish mg/dL, and I gave myself some insulin to correct for it.* I’m more sensitive to insulin in the morning than later in the day. At least I think I am; I’m getting closer to having better pump settings after losing about 35-40 pounds over the last year and after years of never really knowing the right settings. Anyway, I took a slightly lower than recommended amount of insulin for the correction, and then I had breakfast (and more insulin) at work about two hours after my first bolus. Before eating my Monday morning chocolate croissant indulgence, my blood glucose had come down nicely to 220.

An hour and a half later I brushed my teeth.** And then I thought, “I should test again, since I’m going to be driving and away from food, and I have that extra insulin platooning around.” I was expecting something sorta high but not too bad. So I was surprised by an otherwise very good 139.

And this is when I kinda freaked out . . . in my own stoic way. “139! I have to go to the dentist, which means I won’t be able to eat for an hour or so. And I’m on a downward trajectory. And I had expected to be higher. I mean 139 is very good. I should be happy. But I don’t wanna say have to say, ‘Doctor, can we stop with the filling? I feel funny and I need to check my blood and maybe eat something.’*** Ohmigod that would be so embarrassing and betray the fact that I really don’t have my shit together. Gosh, I really don’t want anyone to know about that. I should never write that down. Let’s just eat a banana, why don’t we? Ack! A banana after brushing my teeth. Ack! Well that’s done. You know what, Imma fill up my water bottle and hope that I can ‘clean’ my recently brushed teeth on the drive to the dentist’s office. I hope that doesn’t make me need to pee while I’m getting the filling. You know what, I’d better bring my toothbrush and toothpaste along, too. Awesome. I can hold onto my toothbrush along with my meter while I sit in the dentist’s chair. Gosh, I hope my blood sugar doesn’t go any lower. I’m a total freak show. Get it together.”

Okay. Banana: eaten. Water bottle: partially filled. Toothbrush and toothpaste and BG meter: check, check, and check. Dignity: mostly recovered. Confidence: bruised, but holding. Out-of-the-office e-mail: late, but sent. Car keys: let’s roll.

A mere twenty minutes later I’m sitting in my car in the commuter lot in Newton Centre checking my blood before walking the half-block to the dentist. 132 mg/dL. “W.T.F. Breakfast and a banana! I should be golden — or at least going up. Let’s eat some glucose tablets. I needed to brush my teeth again anyway.” It was probably unnecessary but at this point it’s the diabetes equivalent of holding on to a security blanket or whistling past the graveyard.

And everything goes fine. No low blood sugar while in the dentist’s chair. In fact, I finally start to go up and have to correct a tiny bit the other way afterward. And the rest of the day is golden.

And that’s today’s path through the Choose Your Own Adventure™ that is diabetes.


* — I say “300ish” because although my meter said 317, I suspect in retrospect it wasn’t quite that high. It seems that if I don’t get quite the right amount of blood into a test strip, my new-to-me meter will give a value that’s higher than it actually is. (I like my new meter, the One Touch UltraLink. It talks to my Minimed Paradigm pump, after all. But starting testing as soon as it sips the first drop of blood and then potentially being off by by 20% for an incomplete sample… Damn! But I only learned that this afternoon when I did a little impromptu experiment.)

** — I hate brushing my teeth at work. It seems a bit obsessive. At least that’s what I think about the people I see brushing their teeth at the office. But I believe it’s a felony — not to mention plain-ole nasty for everybody — to go to the dentist with anything other than freshly brushed teeth. So I brushed them for the second time in a few hours.

*** — Except that I would have gauze and a little mirror and a drill in my mouth so it would probably sound something like, “mmrphr mmm mee mrphp miff ma fiwwing?” etc.

Ah yes, eating at the dentists office. That reminds me of the kid at the clinic when I was young who was eating a Snickers bar in the waiting room. Someone casually said something along the lines of “Eating candy at the dentist’s, eh?” To which he responded, “I’m just here because my sister needs a filling.”

For the record, I was getting three “fillings” today — except that they aren’t really fillings. (Although if you’re my insurance company, they totally are.) It seems that over the last 25 years or so, I’ve been a bit too vigorous in brushing, and have “abrasions” on three molars, where I’ve worn away the enamel to expose the dentin underneath. My fantastic dentist is just putting some “enamel” back over it, so that I can “go to work on that over the next 10-20 years.”

Posted in Data-betes, Diabetes, Diabetes Blog Week, Life Lessons, MetaBlogging | 3 Comments

Bon Mots – Part 1

It’s time to share some of the French words that were new to me. If you speak or read French, maybe they’ll be useful to you, too. And if I have missed something subtle in their meaning, let me know.

  • bagnolevoiture (a car)
  • viréepetit rendre-visite (a small trip, a hike, etc.)
  • revendiquer — to claim
  • raté — failed, attempted, missed, abortive (adj./pp.) or failure, misfire, backfire (n.)
  • portiques — gates, turnstiles
  • rien que… — just…
  • jeu de mot — pun
  • étonnant — amazing, enormous
  • toucheun clef sur le clavier de l’ordinateur (keybord key)
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