On today’s installment of 2015 Diabetes Blog Week, we talk about secrets.
“Many of us share lots of aspects of our diabetes lives online for the world to see. What are some of the aspects of diabetes that you choose to keep private from the internet? Or from your family and friends? Why is it important to keep it to yourself?”
I don’t really have a lot of diabetes secrets, but I do downplay some things or keep them within a small group of people (usually other people with diabetes).
The nature of diabetes is that we’re usually not too sick to do all the same things that people without it do, and then it can totally knock us down. Often people fixate on one aspect or the other. Some expect only the best out of us, based on the awesome things we do, and are surprised to find out that we have high BG readings or the occasional debilitating hypo or undesirable A1c results. Because we’re doing things, we seem to have everything “under control,” and it’s mentally disorienting that we can easily switch from high to low. Others latch onto the variability and wonder how we can go out and do stuff at all.
“What does this have to do with secrets or sharing?” you might ask.
When people ask me how my diabetes is going, I wonder what kind of answer they expect to hear or what new thing I can say about it. My diabetes doesn’t change very much. I still go high after breakfast and slide into lunch on the lower side. I can still more-or-less get my blood sugar to do what I want when I exercise in the morning. I still drop more than I want when I exercise in the afternoon. I still haven’t figured out what I need to do have good diabetes mojo when I race. My A1c is higher than I would like, despite my efforts. My diabetes isn’t what I would like it to be, but it has a sort of predictability that I appreciate.
Honestly, I’m not sure this is what people want to hear when they ask about my diabetes. I suppose I could say what I just wrote, but I’m not that articulate most of the time. Or perhaps I should ask them what they want to know. But mostly I just keep my diabetes to myself.