Category Archives: Diabetes Blog Week

Diabetes Snapshots: Paint Talks

Day 6 of Diabetes Blog Week: Snapshots!

In case you didn’t know: I’m in DC. I drove down here yesterday (Friday) to see a major Gauguin exhibit at the National Gallery of Art and to see some people from the diabetes community. Both experiences were really great.

I went to a few other museums in addition to the NGA, and it struck me that the people in the paintings and I had a lot of the same things on our minds. (I recommend clicking on the first image so that you can see all of the “What They Were Thinking” captions.)

Posted in Crusty Old Paint, Diabetes, Diabetes Blog Week, General, I am Rembrandt, Photography, Travel, USA | 4 Comments

Cupcakes are Awesome

Technically, it’s still Friday, so I still have a chance to be legit with today’s Diabetes Blog Week post about . . . what’s this? Diabetes and awesome?

There are a lot of thoughts on my mind recently about diabetes and something in the neighborhood of “awesome.” But as for actual awesome, the only really legit thing is meeting a whole bunch of really great people. For example, take this fantastic couple:

We had cupcakes in DC today.


Posted in Diabetes, Diabetes Blog Week | Leave a comment

We Hates It

It’s Thursday, day four of Diabetes Blog Week. Today we vent.

Ten Eleven things I hate about diabetes:

  1. Carrying extra crap. Because I got the ‘betes, I don’t get to travel light. And I don’t get to wear running shorts without pockets, because I gotta have place on the long runs for the pump, glucose tablets, meter, and energy gels.
  2. Being woken up in the middle of the night (more than once thrice) because my BG is high, I’m going low, or my pump is lonely and will not be ignored.
  3. Not being 100% confident that I’ll get the chance to let my BAMFness express itself fully when I’m racing.
  4. That tiny, hissing, malevolent voice in the back of my head that says every choice has a downside and that I might not be making the best choices to bring my A1c down or to hold off complications.
  5. Spending money on test strips, insulin, glucose tablets, copays, and so on.
  6. Orange glucose tablets.
  7. Not being able to eat something delicious when I’m hungry because my BG is high.
  8. The concern that I cause I other people.
  9. Not being free to exercise anytime I want.
  10. How difficult it is to figure out anything that involves more than one variable (such as balancing nutrition, active insulin, and exercise).
  11. Gushers:


But since I don’t really like focusing on the negatives, let’s balance this post out by listing ten eleven of my favorite films:

  • Casablanca
  • Dr. Strangelove
  • Hero
  • In The Mood for Love
  • Joint Security Area
  • Lady Vengeance
  • Lilo and Stitch
  • O Brother, Where Art Thou?
  • Sling Blade
  • Some Like It Hot
  • Unforgiven
Posted in Diabetes, Diabetes Blog Week | 8 Comments

Insulin Firehose!

Today’s Diabetes Blog Week topic, diabetes bloopers, should make for some good reading. Here is my “man hit in groin by football” contribution. (BTW, this post contains videos that might not show up in your RSS reader. You might want to visit the page directly.)

I make a bunch of diabetes mistakes. (I know, I know. No stop; it’s true.) Mostly they’re miscalculations based on too little information or because I’m too busy/distracted/asleep to put the effort into getting things “just right.” Sometimes this causes me to have hypoglycemia and say ridiculous things, but mostly my life is pretty boring. (And that’s not always a bad thing.)

Occasionally, I make a big mistake or one of my devices malfunctions. Those are the real bloopers. Usually, they’re pretty tame and good for a “you’ll never guess what happened to me” story, but every so often one turns into a slow-motion, should’ve-seen-it-coming disaster.

This is one of those tales.

Those of us intimately familiar with the Medtronic Minimed Paradigm insulin pump know that it has an insulin-filled reservoir with a plunger at one end and tubing at the other. The tubing connects to our body, and the plunger is pushed by a very finely tuned stepper motor that pushes (usually) small amounts of insulin into our bodies.* Every few days, the pump has pushed all of the insulin into the body, and it’s time to change the “consumables.” That process goes something like this: disconnect the pump tubing from the body, rewind the motor, put in a freshly filled reservoir, start a “manual prime” to fill the tubing with insulin, insert a new infusion set into the body, attach the new tubing to the new infusion set, and give a very small “fixed prime” to finish the process.

As you can see, there are a few steps. If you do this enough times — about 100-150 times per year — you get pretty proficient. You can do it quickly in a variety of settings: at home, at the office, in the passenger seat of a car driving down the Kansas Turnpike, in a terminal of the Oakland airport, etc. In fact, it gets so routine you might be tempted to not think about it too much or to cut some corners. Which is usually fine.

A year or so after I got my first Minimed Paradigm pump, it started to have a problem. As noted above, there are two priming steps: “manual prime” and “fixed prime.” The manual one starts the motor moving rapidly toward the plunger and then continues more slowly after a sensor detects the initial contact. A typical manual prime moves about 20 units of insulin to fill the tubing. None of that prime goes into me initially. The fixed prime fills the space left by the starter needle and is only 0.3 units, which goes straight into the part that’s attached to me. It does this so that the next the motor steps, the insulin actually gets delivered and I can get it’s blood sugar-lowering goodness.

The problem with my pump is that the motor wasn’t detecting that it had made contact with the plunger. Can you see where I’m going?

On that day years ago, while changing my insulin and infusion set at the office, I started the manual prime like normal — that is to say, with the pump completely disconnected from my body. After seeing insulin drip (or rather spray) out of the end of the tubing I attached the tubing to my body and (by habit) pressed the button that should have delivered 0.3 units of fixed prime.

Instead, I heard a whirring of the motor as it delivered a whole bunch more insulin. I looked at my pump and saw that it still said “Manual Prime.” After disconnecting, I estimaged that I had given myself somewhere between 15-20 units of insulin, enough for about 150-200 grams of carbs, or about 1/3 to 1/2 of my daily dose at the time.

The good news is that I was ultimately unharmed by this adverse incident, and I had a new pump the next morning. But at the time, as I was drinking glass after glass of orange juice at my kitchen table with my meter next to me — having quickly driven home to be near new pump supplies, my refrigerator, and Lisa, not to mention a fire station full of first-responders just down the street — I made myself a promise that I’ve kept to this day: “I will never again attach the tubing to the infusion set before I see the flashing words ‘Fixed Prime 0.3u.’”


* — The pump bone connected to the reservoir bone. The reservoir bone connected to the tube bone. The tube bone connected to the infusion set bone. The infusion set bone connected to the skin bone. The skin bone connected to the fat bone. The fat bone connected to the blood sugar bone. . . .

Posted in Diabetes, Diabetes Blog Week, Life Lessons, Video | 7 Comments

YO, BIG D

I’m of two minds about today’s Diabetes Blog Week topic. Part of me wants to take it very seriously and write a letter to my 24-year-old, post-diagnosis self, telling me to be as active a participant in my treatment as I can be, to get off the NPH as soon as I leave the hospital, to get myself on an insulin pump much sooner, and (most importantly) to give myself all of that proof from the last few years that diabetes doesn’t have to slow me down at all very much. That would be the inspiring thing to do. But instead, Imma give you KANYE.


YO, DIABETES! KANYE HERE. ME AND MY GIRL LILO ARE HERE TO DROP A TRUTH BOMB ON YOU! AND YOU GOTTA RESPECT WHAT WE’RE SAYING CAUSE KANYE AIN’T PLAYING. (BTW, DON’T MIND WHAT LINDSAY SAYS, SHE’S JUST PASSING THROUGH ON HER WAY TO REHAB.)

NOW, DIABETES, I KNOW YOU’RE JUST BUGGING ALL THESE HARD-WORKING PEOPLE BECAUSE YOU DON’T LIKE THE FACT THAT DIABETIC AMERICA WANTS TO PAY MORE ATTENTION TO ME THAN TO YOU. I GET THAT THEY WOULD FEEL THAT WAY. MY MUSIC ISN’T JUST MUSIC — IT’S MEDICINE. THAT’S A LOT OF PRESSURE FOR ONE HUMAN BEING (BUT I CAN HANDLE IT). AND I KNOW WHERE YOU’RE COMING FROM, TOO, DIABETES. IT’S HARD TO BE AROUND SUCH AMAZING GREATNESS LIKE ME AND ALL OF THE PEOPLE WITH DIABETES. BUT EVERY MINUTE THEY SPEND WORRYING ABOUT YOU IS ONE THAT THEY CAN’T SPEND THINKING ABOUT WHAT THEY REALLY WANT OUT OF LIFE AND HOW TO GET IT.

SO YOU JUST NEED TO RELAX, DIABETES. MAYBE PUT ON “808s” AND JUST CHILL. LEAVE KANYE’S AMERICA ALONE. MUCH LOVE.


AND YOU IN THE MEDIA. SHUT THAT PIE HOLE YOUR MAMA GAVE YOU!

Posted in Diabetes, Diabetes Blog Week | 3 Comments

Diabetes Tribes

It’s Diabetes Blog Week again . . . time to write about diabetes each day for an entire week. Once again, Karen has done a fantastic job creating the topics and organizing the logistics. Kudos to her! Today’s topic touches on the differences between the various kinds of diabetes and the people who have “it.”

Hi, everybody! I have type 1 diabetes. It’s the kind where my pancreas doesn’t work so well because it was eaten by a velociraptor — I mean it was attacked by my immune system. I think, technically, I have LADA (“latent autoimmune diabetes in adults”, a.k.a. type 1.5) since I was diagnosed at age 24, but I’m not 100% sure, because there seem to be only two categories to pigeonhole me into on all of the forms. That “.5″ seems to really throw the medical establishment off. And not just them. I’m still a bit fuzzy on T1.5; in fact, I had to use the Google to find out what the LADA acronym means. (“Latent autoimmune deficiency . . . uh, no that’s not right.”)

LADA is something I’ve been meaning to ask my endocrinologist about for quite a while, but we’ve always been too busy trying to figure out ways to tweak my insulin dosing to help me get my A1c down, and we run out of time to get to more esoteric conversations like this: “So, uh, what exactly am I sick with?” I’ve heard anecdotes from other T1.5 people that there might be different treatment options than the “normal” T1 folks who were diagnosed as kiddos, so it’s definitely worth checking out, but I kinda hope that if there were major changes that one of my endos would have taken advantage of it. You never know.

So usually I just put myself in the T1 tribe. We speak the same language as the T2s and share many of the same customs, but we’re different enough to be distinguishable. I asked a while back for T2s to tell me about their experience with the ‘betes, and I’m still interested in learning more.

. . . Fortunately, we have today’s prompt to help me know my fellow peeps better.

Posted in Diabetes, Diabetes Blog Week | 1 Comment

Diabetes Blog Week, Part Two

OMG! It’s coming.

DBlogWeek2011Banner

You’ve all been warned.

Posted in Diabetes, Diabetes Blog Week, General, MetaBlogging | 1 Comment

Diabetes Blog Week Wrap-up (Plus a Warning Shot)

Diabetes Blog Week finished Sunday. I really enjoyed being part of this, writing my own posts and (especially) reading other people’s contributions. I’m giving a huge “Thanks!” to Karen for coming up with the idea for this village green experience and for providing the essential scaffolding that the rest of us were able to use. It really made participating easier.

It’s wonderful to have a place — virtual though it may be — where people understand what I’m talking about on a deep level.* Because so many of us were conversing on the same subject on a daily basis, I found it much less isolating than the usual “I’m going to talk about diabetes now” experience. And I especially enjoyed the honesty that was possible when we were writing for each other; I didn’t feel like I had to have all my shit together before talking about my disease. (It often feels easier to talk to people with working pancreases, if I just pretend that I do — whether or not that’s the case.)

In fact, I think I finally get the real value in the diabetes online community (DOC). In the past I’ve tend to visit the DOC to get information that I felt could help me manage my illness better. But having read so many posts over the last week, I find myself thinking about it as a place that’s primarily about sharing other people’s experiences, talking about my own, and just being present. Certainly, I’m going to keep trying to learn as much as I can from the same sources as before, but being able to get extra perspectives has a ton of value in itself.

I wonder if you feel the same way, too. And I hope that if you’ve been reading me for the first time over the last week, you’ll stick around. Big things are going to happen in the coming weeks that you might want to read about — for example, we’re going to Australia for a month — and I’ve been enjoying all of your comments.

Now here’s the scary part (for me, at least). I want all y’all from the DOC to stick around, but I’m not primarily a “diabetes blogger.” I have a lot of stuff on my mind: diabetes, the US healthcare system, travel, photography, New England cemeteries, and a bunch of stuff that’s more like work than fun. (That last chunk of stuff actually comprises the majority of the traffic to my site, if not the majority of what I write about. . . . Go figure.) And I use this space to post on all of those things. Unless you’re actually me, some of my regular topics aren’t going to be your cup of tea.

So let’s make a deal. If you stick around and ignore the non-diabetes posts that don’t interest you, I promise to give you something worth reading more often than not. Just add me to your RSS feed reader or stop by regularly. Deal? Good.

. . . And now it’s time to put this new relationship to the test. I’ve been sitting on the next two posts (people’s exhibits a and b) for the last week so that they wouldn’t get in the way of your Diabetes Blog Week reading. It was enjoyable, but my! wasn’t there a lot of reading?! And I just didn’t want to add to that.

See y’all again soon!


* — I’m reminded of the time that I accidentally happened upon a little people’s convention in the late 80s in Des Moines, Iowa. Lots of people who are usually “the other” were running around doing their own thing in a supportive community. I felt like the odd one out. In the DOC, we’re on the inside.

Posted in Diabetes, Diabetes Blog Week, MetaBlogging | 3 Comments

A Life Without Diabetes

Here it is, the last day of Diabetes Blog Week. Thank you so much, Karen, for proposing this online extravaganza. Today’s topic is a fitting valediction: Life after a cure.

Diabetes Blog Week banner

I’ll just get this out of the way up front: I’m of two minds on a cure.

I very much want a cure for diabetes. It’s a complete pain in the ass. It affects millions of people worldwide. Even in the most developed nations, it’s a costly illness that shortens life expectancy and makes so many things more difficult. But it’s a disease that knows no borders; and despite being reported in the press as “a disease of prosperity,” it affects the rich and the poor alike. Throughout Diabetes Blog Week, I’ve read a lot posts by parents of children with diabetes; even more for them than for myself, I want a cure.

And yet, I know that patients who accept the facts of their chronic illnesses tend to have better health outcomes than those who cling to hope for a cure. The absence of a cure is the way things are, and the best that I can do for myself and those who care about (and for) me is to do my best everyday with no expectation of ever being free of diabetes. It’s a harsh, pessimistic mindset that I can’t completely buy into, but on a certain level it’s the way I have to think. Yet, I’m new enough to this disease — only eleven years — to occasionally become deliriously hopeful when I hear about some promising-sounding results from JDRF, Joslin, and other research groups.

The Cure
And then, of course, there’s The Cure.

Given my ambivalence, how do I address Karen’s hypothetical proposal?

We are all given a tiny little pill to swallow and *poof* our pancreases are back in working order. No side effects. No more insulin resistance. No more diabetes. Tell us what your life is now like. Or take us through your first day celebrating life without the Big D. Blog about how you imagine you would feel if you no longer were a Person With Diabetes.

I hope that being free of diabetes wouldn’t change me in fundamental ways. I think I have sufficiently internalized the lesson over the last year that eating a reasonable amount and exercising regularly are good parts of our family’s lifestyle. I hope that I would still keep in touch with all of the people I’ve met in the diabetes online community. And I don’t feel like there’s anything now that I can’t do.

But I do think things will be much easier. I will be able do things (like going for a ride or a run. . . or to the dentist) without worrying about how much insulin is floating around and whether my blood sugar is high or going low. It will also be nice to be free of concern over complications — supposing that I haven’t already done the damage. And I’d love to banish those ever-present concerns about whether I guessed the right amount of bolus, whether my basals are right, whether I’m going to go low overnight, etc. After eleven years, I wonder if it will even be possible to get rid of those feelings; perhaps they’re an indelible part of my personality now.

Whatever happens, I can promise you this: I will continue to do everything I can to make sure that everybody worldwide has access to that magic pill.


Update: Oh! I would also go to Kelly’s beach party.

Posted in Diabetes, Diabetes Blog Week | 3 Comments

A Day Late, A Tube Short

Yesterday was day #6 of Diabetes Blog Week. I managed to miss it because we were kinda busy. So I’m gonna make up for it today with two posts. First, some diabetes snapshots.

Diabetes Blog Week banner

Before the pictures, a little story. Remember that on Friday I wrote that I was going to do 90 mile ride in the Taconic Range today? Turns out, I forgot about an evening obligation, so I decided to delay the ride until next weekend and do a similarly sized ride starting at home but without any mountains.

About two hours into my ride through Massachusetts, Rhode Island and Connecticut — before I really even had a chance to get bored — I got a flat. After a year of riding, I was due, but it could have happened in a more convenient place, instead of halfway across the West Thompson Dam. My first thought was a hope that I could just raise my hand like they do in professional races and summon the neutral service vehicle for a quick wheel change. Oh, delusions!

After walking myself back to a place with a shoulder, I made a rookie mistake, breaking the head off the valve of my flat tube as I took it off the wheel. Had I been wiser, I would have also brought an extra tube with me. Like I said: rookie mistakes. Nothing to do after that but pack it in and call Lisa to pick me up. She’s a sweetheart, that girl.

Next week, I’ll be more sensible when I finally do that ride in the mountains.

Here are some pictures from the past couple days:

Eating Palak Paneer
Lunch of palak paneer and chicken korma

What?!
What?!

Testing
How did we do SWAGging lunch? Uh . . . coulda been better.

Bloggin'
Reading all y’all’s blogs

A movable feast
A movable feast

Bike in the graveyard
Stopping by the cemetery in Burrillville, Rhode Island

Joslin marker
Lots of Joslins in this part of Rhode Island and Connecticut

Dr. Joslin, I presume?
I thought at first this might be the guy we PWDs owe a debt of gratitude, but he seems to be an uncle of some distance.

Thompson, CT
Waiting for the cavalry in Thompson, CT

Waiting
I barely worked hard enough to muss my hair

Posted in Burying Grounds, Cycling, Diabetes, Diabetes Blog Week, Life Lessons, USA | 1 Comment

It’s ALL about the Bike

It’s day #5 of Diabetes Blog Week. Today we’re talking exercise.

Diabetes Blog Week banner

I have a bike. I like love to ride it all over.*

Is that exercise? I guess that depends on whether you think it’s “exercise” to do the thing that you love.

On one level, the answer is undeniable: Yes. I have to carve out time from my daily schedule to do it. Sometimes I have to convince myself to get going, especially when I’ve had a tough day and I want to veg out. And it burns a lot of calories, which was part of my initial motivation. According to the computerized bean-counters at MapMyRide.com, I’ve burned more than 130,000 Calories over the last 10 months by running, bicycling, and swimming,** which helps explain why I lost about 25 pounds over the same period.

I don’t think about it as exercise, though. In fact, what I do after work feels more like training. I “train” on weekdays so that I can ride longer distances with more ease on the weekends. I wear myself out repeatedly riding up long hills so that I can feel badass when it comes time to ride up an actual mountain. I go out in the winter and in the rain to put the miles in the bank, so that they’re there when I need to draw on them in the fourth or fifth hour of a ride. While I’m out training I have mental image of my idealized self. “I’m climbing like Andy Schleck. I’m grinding away on the flats like Fabian Cancellara. I’m spinning easily like all those other people in the peloton, waiting for the breakaway to wear itself out.”***

Whatever I call it, cycling is something that I love and that I think about way too much while I’m at work. I live for the long ride on the weekend. This Sunday, I hope to do the 90-mile ride that I was going to do last weekend before the jet stream shifted and changed my plans: Up and over Mt. Greylock in western Mass. before heading into the Taconic Range that divides New York from New England.


View Larger Map

As with all things diabetes, it’s not as easy as just putting in the miles and showing up. There’s day-to-day planning that has to happen, too. I find it easiest to ride in the morning before the day’s first bolus: Just lower the basal about 50% an hour or two before starting and eat frequently along the way, testing every hour or so. I put Clif bars, bananas and string cheese in my jersey pockets and fill up my bottles with Gatorade. And on the weekends that’s what I do.

But weekdays I ride after work, so it’s more challenging. I hate seeing the high numbers, but I build up a bit of a blood sugar cushion by snacking without bolusing along with lowering my basal. And I drink Gatorade throughout my hour-long workout. I’ll keep tweaking everything until I get it right — until my BG levels don’t drop 50-100 mg/dL in an hour — and then I’ll lock it in until diabetes decides to change how my rules work (again).

Thanks to diabetes, I always carry three things with me when I ride****. (1) A tube of glucose tablets, which I occasionally need to use. (2) My phone, which I fortunately have not had to use except to snap the occasional picture. And (3) about $15 dollars in small bills in case I need to stop for an emergency snack or to bribe someone.

But to paraphrase Lance Armstrong, it’s not about the diabetes. I love to ride, and diabetes can come along if it promises to keep up. When I actually get on the bike to ride, that’s the time when I feel like I’m beyond diabetes. I put my pump in the pocket of my Team Type 1 jersey to represent for my PWDs and because I’m so damn proud and inspired by what that professional team does; but cycling connects me to a time before I had diabetes, and it’s my way of being as free from it as possible.


* — I’ve also been known to run, walk, hike, and backpack. And, yes, I’ve even started to enjoy swimming — though, I still suck at it.

** — Seriously, I’m not thinking about competing in a triathlon. I’m not.

*** — I have no delusions about my abilities, though. I’m just a guy with diabetes on a bike, after all.

**** — That’s in addition to the Boy Scout stuff that always stays with the bike: fix-it tools, patch kit, tire levers, etc.

Posted in Cycling, Diabetes, Diabetes Blog Week, Life Lessons, Running, This is who we are | 4 Comments

The Trials of an Indifferent Eater

It’s day #4 of Diabetes Blog Week. I have really enjoyed reading so many of the posts. I think I have a greater appreciation for what parents of PWD go through. (Here’s to you, the hard-working and perpetually worrying D-Moms and D-Dads!) And I feel more connected to the community than ever before. Thanks for proposing this, Karen!

Today’s topic is food, specifically “To Carb or Not To Carb?” What we eat and what we avoid. High carb or low carb diets. It’s all on the table — so to speak — today.

Diabetes Blog Week banner

Fellow people with diabetes and other readers, I have a confession. I’m not really that into food or eating.

There. I said it.

Don’t get me wrong. I really enjoy eating tasty things, especially when they’re prepared with great care and passion. Some of my favorite things in the world are JP Licks ice cream, truffles from Moonstruck Chocolates, cannoli from Mikes in Boston’s North End, really great cheesecakes, and fresh berries. There’s no more enjoyable way to start the day than with a chocolate croissant, pain au chocolat, or crêpe; and it’s probably good that I’ve given myself a (small) weekly quota. I can still taste the fantastic (and very expensive) steak that I had at Morton’s Steakhouse in San Diego almost ten years ago; and the memory of the stilton on the cheeseburger from Gourmet Burger Kitchen in London still makes me smile. As do the rogan josh from the Lake Palace in Udaipur, the dosa I had in Shimla, and the gulab jamon in Madras. Just about every time that I’m out riding my bike during somebody else’s mealtime, I smell a grill and desire a bratwurst with sauerkraut and all the fixings. About once a month I want to take a trip to Salt Lake City to have the best reuben sandwich I’ve ever tasted; and just as often I want to find that hole-in-the-wall bar-b-que shack in the woods outside Kansas City that the energy traders took me to a few months before I was diagnosed. I’m surprised I haven’t made a road trip with Lisa to Montréal just to go to Le Keg. I like good pizzas and well-made omelets and blueberry waffles. I have a thing for fully stuffed, unhealthy burritos from Qdoba or Chipotle and palak paneer from just about anywhere. And dammit, I’m not even hungry now, but I want a fish taco from Rubio’s.

Having owned up to all that, I can still say that I’m not a foodie. (Though I wouldn’t mind being one.) My approach toward food is (sadly) opportunistic. If the chance to eat great food is present, I will take up the challenge (and probably pick up the check for friends, too). But for the most part, I’m just kinda indifferent. I’m adverse enough to risk that I don’t go out of my way to find great restaurants near where I live. Furthermore, I lack the experience or the passion to be a decent cook/chef/saucier/whatever. Having worked in a deli, I know which meats and cheeses go well together — and cheese is about the best elemental food in existence — but I can’t get the herbs and spices right when I try to put them together in the kitchen. And I’ve been called “methodical and slow” while cooking, so my creations (few as they are) often taste a bit . . . well . . . clinical uninspired.

It’s perhaps a bit ironic that I should be afflicted with something that’s so often thought of as a disease about food. “Cheating?” Not really my thing. It once took me two hours to eat a bag of Reese’s Pieces from the vending machine. Like every American worth his or her extra large portion of salt, I’ve been known to overeat. And it was really quite difficult to cope with the severe “no more than 60g of carbs at any meal” dictum that my former endocrinologist threw down when he started me on NPH in 1999. I ate a lot of sugar-free Jello to keep my stomach from eating the remaining nearby organs that I might need.

Getting on the pump in 2001 was so liberating. I could stop thinking so much about food. Or rather I could think about eating when I wanted to eat and skip snacks when I didn’t want them. Delivered pizza was suddenly back on the menu as a “sometimes food.” So was ice cream, along with those other things that occasionally make eating a transcendent experience. And there’s really no such thing as “cheating” any more, since I can always just bolus tiny amounts for the random snacks that come my way — perhaps because someone put Dunkin Donuts’ munchkins by the printer. Or jelly beans. Or Halloween candy. Or Easter candy. (BTW, this junk food magnet printer is right outside my office. “Oh look, it’s a snack that I don’t really want. Oh, the joy.”)

High carb? Low carb? No carb? I’m really more of a calorie person, myself. I try to keep my meals a reasonable size, and then I count the carbs that are there and bolus insulin accordingly. But the more that I exercise the more that I think about carb timing. Lately, I’ve been trying to eat the right number and kind of carbs in the middle of the day so that I can have a minimal amount of bolused insulin floating around when I head out to ride the bike or go for a run.

And strangely, I’ve been resisting the challenges that this presents, since it feels a bit like the old, austere NPH days. And yet, I want the good things that come with thinking more about food.

That’s diabetes and food in a nutshell, isn’t it?

Posted in Diabetes, Diabetes Blog Week, Life Lessons | 3 Comments

A Guest Post From My Biggest Supporter

It’s day #3 of Diabetes Blog Week. I still have Ludacris’s “How Low Can You Go?” running through my mind after yesterday’s post about hypoglycemia. Lisa, my lovely wife, has been faithfully reading this week’s dispatches and volunteered to write today’s post about my biggest supporter, someone she knows very well: her.

Diabetes Blog Week banner

To paraphrase the Ohio Players, “your diabetes is like a rollercoaster, baby.”

Back in 2003, Jeff and I went to Cedar Point in Sandusky, Ohio. Cedar Point is an amusement park with a bunch of amazing rollercoasters. I love rollercoasters. But at the beginning of the ride, there is the fear . . . that you’re going to get whipped around and turned upside down and have absolutely no control over anything. Oh sure, they tell you that you’ll end the ride safely but at the beginning you’re just sure you’re going to fly off the rails into Lake Erie. This is not an original thought but it is true that living with someone with a chronic disease can be like that emotionally. The most extreme example was the day Jeff was diagnosed, during which I experienced:

Absurdity — as the wide-eyed nurse practitioner told me that, though she couldn’t actually confirm it because the doctor’s testing equipment was broken, she was sure Jeff had diabetes and that was very, very bad. Very bad.

Protective concern — as the nurses in the ER (where we were sent for an official blood test) couldn’t find a vein into which to insert the IV because he was so dehydrated.

Exasperation — at the third round of the exact same battery of questions (we were at a teaching hospital). Yes, he was cranky. Yes, he lost 40 pounds in about 6 weeks. No, he wasn’t hungry. Yes, I’m sure he wasn’t hungry. No, I didn’t know that lack of appetite was odd for people with untreated type I diabetes. No, he didn’t smell “fruity.” Yes, I’m sure I would have noticed if my husband smelled like Fruit Loops.

Back to absurdity — as the attending ER physician became obsessed with the different pressures in my husband’s two eyes. Seriously, I don’t need to feel my husband’s eyeballs, thank you!

Relief — that my husband, hooked up to the insulin-rich IV, was feeling better.

General Confusion — a blood sugar of 304 after more than 18 hours without food can’t possibly be good. How did I not notice that we’ve been in the ER for almost five hours? I guess I missed my afternoon class. Damn, I’m hungry. I’m not leaving to eat because the instant I do, they’re going to admit him and take him to a room somewhere and I’ll never find him.

And then, alone by myself at home that night — the stress and fear. In one of my less-than-shining moments of wifehood, I made him call his mom to tell her the news because I didn’t have the courage to do it myself. I did tell my own parents and spoke to several good friends that night . . . strangely obsessed with the implications of his diagnosis on the unopened box of Hostess Cupcakes in our cupboard.

There was nothing fun about the emotional ride we went on that day. And for a while, it seemed actually to get harder. I hated learning how to give him insulin injections (it honestly doesn’t help that the needle is tiny and he says it doesn’t hurt. That, though, was better than seeing the much larger needle for the glucagon shot in case he got dropped off the back of the magic bus). There was the interminable slowness of the first few post-diagnosis trips to the grocery store where we had to learn how to shop all over again and read every . . . damn  . . . label. There was the feeling of restriction because his insulin regimen meant eating at specific times and knowing exactly what was in the food, which in turn meant having to (perish the thought) cook. And the sadness of knowing that this was probably never going to go away.

But then it gets better, almost before you realize it. We share victories both big (the freedom resulting from switching to an insulin pump) and small (having days with well-controlled blood glucose). We continue to benefit from the overall better health resulting from the lifestyle changes forced upon us. We are able to constantly wonder at medical and scientific advances and hope that, someday, they might find a away to cure this disease. And, we find the humor — in the goofy things Jeff says when his blood sugar is low, in the Life Savers that get very clean (and liquefied . . . thank goodness they’re individually wrapped) in the wash because they weren’t removed from Jeff’s pockets, and in remembering that wide-eyed, oh-so-misguided nurse practitioner with the horrible beside manner who probably violated several privacy laws when she gave me the very, very bad news.

Chronic disease doesn’t just impact the person who has it. It can be hard on the spouse or significant other or child because they’re never going to really get what’s happening and they can’t fix the problem. But, if you’re lucky you remember that neither of you is alone. You’re in it together, and whether you end safely or fly off the rails, nothing is as scary if you have someone to share the ride and hold hands along the way.

Posted in Diabetes, Diabetes Blog Week | 8 Comments

Making the Lows Go

It’s day #2 of Diabetes Blog Week. Today: making the lows go.

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First off, I want to assert that food tastes better when I’m driving the magic bus. Maybe it’s because there’s no less guilt about eating tasty things. Maybe it’s because part of my brain is actually turned off. . . literally. It’s kind of like hearing a favorite song as you drift off to sleep, the equivalent of eating something tasty for the first time. It’s a “new” food experience, and it’s wonderful. And there’s a raw, physical craving for food that I rarely ever experience, too.

But, I hate hypoglycemia. Along with enhancing the flavor of food, it brings other less welcome sensations, such as my brain and eyes trying to trade places and the fear of passing out. So I primarily eat to make the feeling go away.

Add to that the (perhaps incorrect and not altogether bad) feeling that diabetes usually prevents me from eating as much as I want. Back in the bad, pre-pump days of my NPH regimen, it was actually the only excuse to eat more than an exact amount on a rigidly defined schedule.

Combine all of these and it’s not hard to believe that I tend to over-treat my lows. I’m not as bad as I used to be, but it’s still hard to have the hypo feeling and say, “That’s enough. Stop eating tasty, mostly guilt-free food. Diabetes, you win again.” No, I can say that I used to use my lows to stick it to diabetes.

Switching to glucose tablets (and having better influence over my blood sugar) has helped curb the practice. Tabs aren’t that bad — and they’re much easier to eat while exercising, which is why I switched — but they aren’t exciting either. Eating one for the 40th time is no different than eating one for the first time. A bit chalky, a bit melt-awkwardly-in-your-mouth, a bit artificially flavored. Yummy, huh.

Do I miss the days when, sitting up wide awake in the middle of the night, shivering in the middle of the summer because of the cold sweat, I would go down to the kitchen and pour myself some juice and then rummage through the kitchen eating until I got my good sense back? No, not at all.

Posted in Diabetes, Diabetes Blog Week, Life Lessons | 2 Comments

Dentistry and Diabetes: Freak Out Edition

This is Diabetes Blog Week, and I’ll be writing all week on a variety of D-related issues. Today: A day in the life.

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Diabetes is a strange thing. It’s part of me, but it’s outside my control. As Jessica Bernstein said on Diabetes Mine last month, the best I can do is influence my blood glucose numbers. I can’t hate diabetes without hating myself; but if the ‘Betes were another person, I would probably say that I hated it the way treated me on a regular basis. And yet, it’s also inspired me to make changes and take risks and to go beyond my comfort zone on an almost daily basis. Today was such a day.

Most of the time — for me at least — these excursions beyond my comfort zone aren’t very exciting. It’s not like I’m pushing the limits in adventure activities or in the Olympic games or in world-class professional bicycle racing. It’s true that I do like to ride my bike, which means almost daily changes to my insulin pump therapy. And I also like to travel and do (tame) “adventure” things, like going to crazy places and driving an RV. But the things that make me the most nervous are the ones where my diabetes might get in the way of working with other people.

For example, let’s consider this morning. I went to the dentist. The stuff of adrenaline-fueled adventure magazines or inspirational speaking, eh?

I woke up with a high blood glucose: 300ish mg/dL, and I gave myself some insulin to correct for it.* I’m more sensitive to insulin in the morning than later in the day. At least I think I am; I’m getting closer to having better pump settings after losing about 35-40 pounds over the last year and after years of never really knowing the right settings. Anyway, I took a slightly lower than recommended amount of insulin for the correction, and then I had breakfast (and more insulin) at work about two hours after my first bolus. Before eating my Monday morning chocolate croissant indulgence, my blood glucose had come down nicely to 220.

An hour and a half later I brushed my teeth.** And then I thought, “I should test again, since I’m going to be driving and away from food, and I have that extra insulin platooning around.” I was expecting something sorta high but not too bad. So I was surprised by an otherwise very good 139.

And this is when I kinda freaked out . . . in my own stoic way. “139! I have to go to the dentist, which means I won’t be able to eat for an hour or so. And I’m on a downward trajectory. And I had expected to be higher. I mean 139 is very good. I should be happy. But I don’t wanna say have to say, ‘Doctor, can we stop with the filling? I feel funny and I need to check my blood and maybe eat something.’*** Ohmigod that would be so embarrassing and betray the fact that I really don’t have my shit together. Gosh, I really don’t want anyone to know about that. I should never write that down. Let’s just eat a banana, why don’t we? Ack! A banana after brushing my teeth. Ack! Well that’s done. You know what, Imma fill up my water bottle and hope that I can ‘clean’ my recently brushed teeth on the drive to the dentist’s office. I hope that doesn’t make me need to pee while I’m getting the filling. You know what, I’d better bring my toothbrush and toothpaste along, too. Awesome. I can hold onto my toothbrush along with my meter while I sit in the dentist’s chair. Gosh, I hope my blood sugar doesn’t go any lower. I’m a total freak show. Get it together.”

Okay. Banana: eaten. Water bottle: partially filled. Toothbrush and toothpaste and BG meter: check, check, and check. Dignity: mostly recovered. Confidence: bruised, but holding. Out-of-the-office e-mail: late, but sent. Car keys: let’s roll.

A mere twenty minutes later I’m sitting in my car in the commuter lot in Newton Centre checking my blood before walking the half-block to the dentist. 132 mg/dL. “W.T.F. Breakfast and a banana! I should be golden — or at least going up. Let’s eat some glucose tablets. I needed to brush my teeth again anyway.” It was probably unnecessary but at this point it’s the diabetes equivalent of holding on to a security blanket or whistling past the graveyard.

And everything goes fine. No low blood sugar while in the dentist’s chair. In fact, I finally start to go up and have to correct a tiny bit the other way afterward. And the rest of the day is golden.

And that’s today’s path through the Choose Your Own Adventure™ that is diabetes.


* — I say “300ish” because although my meter said 317, I suspect in retrospect it wasn’t quite that high. It seems that if I don’t get quite the right amount of blood into a test strip, my new-to-me meter will give a value that’s higher than it actually is. (I like my new meter, the One Touch UltraLink. It talks to my Minimed Paradigm pump, after all. But starting testing as soon as it sips the first drop of blood and then potentially being off by by 20% for an incomplete sample… Damn! But I only learned that this afternoon when I did a little impromptu experiment.)

** — I hate brushing my teeth at work. It seems a bit obsessive. At least that’s what I think about the people I see brushing their teeth at the office. But I believe it’s a felony — not to mention plain-ole nasty for everybody — to go to the dentist with anything other than freshly brushed teeth. So I brushed them for the second time in a few hours.

*** — Except that I would have gauze and a little mirror and a drill in my mouth so it would probably sound something like, “mmrphr mmm mee mrphp miff ma fiwwing?” etc.

Ah yes, eating at the dentists office. That reminds me of the kid at the clinic when I was young who was eating a Snickers bar in the waiting room. Someone casually said something along the lines of “Eating candy at the dentist’s, eh?” To which he responded, “I’m just here because my sister needs a filling.”

For the record, I was getting three “fillings” today — except that they aren’t really fillings. (Although if you’re my insurance company, they totally are.) It seems that over the last 25 years or so, I’ve been a bit too vigorous in brushing, and have “abrasions” on three molars, where I’ve worn away the enamel to expose the dentin underneath. My fantastic dentist is just putting some “enamel” back over it, so that I can “go to work on that over the next 10-20 years.”

Posted in Data-betes, Diabetes, Diabetes Blog Week, Life Lessons, MetaBlogging | 3 Comments